The terrifying fact is this: Huntington's disease leads to physical and mental deterioration. There is no cure. It is handed down genetically, with a 1:2 chance of inheritance that cannot be dete
The terrifying fact is this: Huntington's disease leads to physical and mental deterioration. There is no cure. It is handed down genetically, with a 1:2 chance of inheritance that cannot be determined until the disease shows itself, often not until the sufferer is in their 40s. Many do not know they have the gene or are at risk of passing it on. Those who do know, because a parent has suffered from it, may wait a lifetime before finding out whether they are safe or not. The prospects are horrific. After his first marriage failed, Brian Verity had a breakdown and married the woman who nursed him back to health. Within a few years, she began showing the signs of Huntington's that he had seen in other members of her family and that he had a morbid fear of. Having fallen in love with her in hospital, he now found himself repelled, fearful of his own psychological fragility and inability to cope and yet committed to protecting her from the terrible distress that lay in wait. In his view, assisted dying was her only option. Was he right? In this tough, uncompromising book, Brian Verity raises difficult ethical questions about the freedoms granted to carriers of the Huntington's gene to raise children of their own and the lack of freedom given to them to end their lives.This is not a book with a happy ending, nor have its full ramifications yet been embedded into our supposedly caring society.
